Date

5-12-2020

Description

Because of the inherently complex nature of food allergy management, shortages in special education teachers (especially qualified ones), vagueness of Individual Education Plans implementation in the Individuals with Disabilities Education Act, and the role of caregivers in healthcare management, the management of food allergies for individuals with Intellectual and Developmental Disabilities likely could be improved. For that reason, this study investigates the role and effectiveness of caregivers and aids in the food allergy management of children with intellectual or developmental disabilities in United States public high schools. To address this inquiry, a survey asked parents of children with FA and IDD about their lived experience, and interviews of a select group of survey respondents elaborated on the survey results. The survey and interviews found a discrepancy in the needs of parents and the care they receive, as well as occurrences of violations of IEPs. The results of this project provide a greater understanding of the experience of food allergies and IDD to the field of literature, but are most significant in potential future research. The disparities in care between schools suggests the need for uniform policy regarding food allergy management, or a system to enforce pre-existing policy.

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May 12th, 12:00 AM

Some Children Left Behind: Food Allergy Management of Students with Intellectual/Developmental Disabilities

Because of the inherently complex nature of food allergy management, shortages in special education teachers (especially qualified ones), vagueness of Individual Education Plans implementation in the Individuals with Disabilities Education Act, and the role of caregivers in healthcare management, the management of food allergies for individuals with Intellectual and Developmental Disabilities likely could be improved. For that reason, this study investigates the role and effectiveness of caregivers and aids in the food allergy management of children with intellectual or developmental disabilities in United States public high schools. To address this inquiry, a survey asked parents of children with FA and IDD about their lived experience, and interviews of a select group of survey respondents elaborated on the survey results. The survey and interviews found a discrepancy in the needs of parents and the care they receive, as well as occurrences of violations of IEPs. The results of this project provide a greater understanding of the experience of food allergies and IDD to the field of literature, but are most significant in potential future research. The disparities in care between schools suggests the need for uniform policy regarding food allergy management, or a system to enforce pre-existing policy.